The PBC Name Change

Over the course of 2015 there was extensive discussion about whether the name of PBC should be changed from Primary Biliary Cirrhosis to Primary Biliary Cholangitis. The majority of PBC …

Evaluating the impact of PSC on patients

We are initiating an ambitious new project to quantify the experience of patients with PSC, assess its impact on their quality of life and monitor this over time. No validated …