In the Spring we received some fantastic news – we were successful in our funding bid to the NIHR! We secured a £200,000 grant, which runs from 1 April 2015 until 31 March 2017. With this funding we can move beyond genome-wide meta-analysis to deep phenotyping of both the whole PSC patient cohort and specific groups. From there we aim to invite all study participants to join clinical trials of new treatments.
We are currently submitting an ethics amendment, to enable us to implement our plans, which include participation by children with PSC.
We will be in touch with all UK PSC sites, once our amendment has been reviewed by the Ethics Committee. If you have any queries, please contact Bridget Bell (B.F.Bell@bham.ac.uk).